Free Download Our Stories of Strength - Living with Ehlers-Danlos Syndrome

[Free Download.cg44] Our Stories of Strength - Living with Ehlers-Danlos Syndrome

[Free Download.cg44] Our Stories of Strength - Living with Ehlers-Danlos Syndrome

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An inspirational collection of stories, filled with devastation, heartbreak, triumph, and strength as written by those affected by different types of Ehlers-Danlos Syndromes. These are stories of hope and resilience, of strength under adversity, of self-reliance and new-found sources of support. They offer one core message to all who suffer from the diverse and difficult manifestations of EDS: You are not alone. - Dr. Clair Francomano, MD Ehlers-Danlos Syndrome is another form of the human body. Just as there are tall people, short people, dark skin colored people, and light skin colored people, each with their own set of medical issues similarly there are hypermobile people and not so hypermobile people who have different medical issues. Our understanding of EDS has improved, but we still have a lot of work to do. While the medical world works on understanding Ehlers-Danlos Syndrome, people with EDS have provided us with stories of courage and ingenuity. These stories give others and doctors the strength to find solutions. - PRADEEP CHOPRA, MD As a physical therapist who works with many patients suffering from EDS, I've seen firsthand how isolating and frustrating EDS can be. Along with a more knowledgeable medical field, what these patients need most is an understanding that they are not alone and to be given hope. 'Our Stories of Strength' provides both community and hope and will be just as effective as any medication or exercise. - CHRISTOPHER GNIP, PT, DPT EDS is a group of heritable connective tissue disorders that can cause a wide variety of symptoms throughout different body systems; each unique in presentation to the individual. The variety of symptoms and presentations proves challenging to the medical community in diagnosing and treating patients; many of whom are misdiagnosed and suffer as a result. EDS has been commonly viewed as just Benign Joint Hypermobility Syndrome (BJHS/JHS) or Hypermobility Syndrome (HMS). Based upon recent research, the prevalence of EDS exceeds current estimates. Kendra Neilsen Myles and Mysti Reutlinger founded Our SOS Media, LLC with core values of giving back to non-profit organizations, creating jobs for people living with invisible and chronic illnesses, and providing an outlet to those willing to share their stories through submissions in the Our Stories of Strength anthology series. Our SOS Media, LLC recognizes that it is through opening doors to needed conversations and sharing stories of strength, determination, and perseverance that we are able to facilitate positive changes to the way we live and help shape perceptions of those around us, as well as in the medical community. We are stronger together. Patients Share Humanistic Side of Living in Pain amid 181 comments on Patients Share Humanistic Side of Living in Pain amid Lawmaker Opioid Hysteria AIDS definition of AIDS by Medical dictionary AIDS Definition Acquired immune deficiency syndrome (AIDS) is an infectious disease caused by the human immunodeficiency virus (HIV) There are two variants of the Our Spiritual Nutrition - is05 Our thoughts create our reality - learn how to change them The psychological and social impact of Klinefelter's Syndrome The psychological and social impact of Klinefelters Syndrome: Report for the Klinefelters Syndrome Association Authors: Marianne Morris Sue Multiple tendon inflamations - Medical Stories - Our Health Posted By: sparke; August 19 2007; 08:45 PM; I have had tendinitis in both my elbows for a very long time3 years for my right and 1 year for my left POTS (Postural Orthostatic Tachycardia Syndrome) Postural orthostatic tachycardia syndrome (POTS) is a condition of dysautonomia and more specifically orthostatic intolerance in which a change from the supine Ehlers-Danlos syndrome - Mayo Clinic Mayo Clinic College of Medicine and Science; Mayo Clinic Graduate School of Biomedical Sciences; Mayo Clinic School of Medicine; Mayo Clinic School of Continuous Chronic Inflammatory Response Syndrome - Chris Kresser Dr Shoemaker is a pioneer in understanding how low-dose biotoxin exposure including toxic mold and algae impacts our health and contributes to disease Living with a Rare Disease: stories from patients and families Living with a Rare Disease Most rare diseases have no cure so living with a rare disease is an ongoing learning experience for patients and families Ehlers-Danlos Syndrome The Mighty Ehlers-Danlos Syndrome (EDS) is a group of connective tissue disorders most commonly affecting the joints or skin It involves a defect with the protein collagen
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